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Product details
File Size: 6645 KB
Print Length: 907 pages
Publisher: Johns Hopkins University Press; 1 edition (June 6, 2014)
Publication Date: June 6, 2014
Sold by: Amazon Digital Services LLC
Language: English
ASIN: B00LNCTODI
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Amazon Best Sellers Rank:
#496,691 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
I have read just about every Lupus book out there--from memoir to treatise, from books aimed at neophytes to those targeted at the experienced patient. At this point I could probably write one of my own. But I keep reading rather compulsively, hoping to learn something new that will prove helpful. Usually this task proves rather Sisyphean.But I struck gold when I read this book, far and away the most lucid treatment of the disease I have ever read. Anyone who has Lupus should read it, highlighting it as I did on my Kindle. Anyone who cares for, lives with, or loves someone with Lupus should read it. And (unlike other Lupus books) anyone who treats Lupus patients--as a physician or nurse--should also read it. It is jam-packed with tons and tons of very helpful advice and medical information.However, if you do not have any biology background (as I do) you may find certain portions of the book a bit hard to understand. Just skip them. They are not important anyway. The advice sections, which are extensive beyond belief, do not require any knowledge of science and are very clearly written. I do like that Dr. Thomas has not watered down his book as other physicians do, and that he assumes that Lupus patients can choose to read those sections or not.I hope he realizes that by writing this volume, he will empower the Lupus community (which is huge). Armed with an extraordinary amount of his medical advice--some of it granular and some, not--patients can go to their physicians to ask for critical lab tests and game changing medications. Many Lupus patients are not fortunate enough to have access to quality medical care, for one reason or another. This book may further propel them to be their own medical advocates, and substantially improve their health. It is a must-read.
Fabulous book. Very informative, but still readable. Author explains very complex medical information in understandable ways. Lupus is a very illusive, and misunderstood disease, even by most doctors. My wife was finally diagnosed properly 12 years ago, and has received excellent care from a rheumatology specialist who has greatly improved the quality of her life. Unfortunately, she went for another 15 years to doctors who did not recognize her symptoms, and diagnosed her with pretty much everything but Lupus. I wish we would have had a resource like this back then. Become informed, and seek out specialists who undersatnd Lupus and are up to date on state of the art treatments. After reading this book you will know more about Lupus than most of the doctors you see. We had two different doctors tell my wife that she was just depressed, and needed to get out in the sun more - Well, with Lupus, that is the worst thing you can do. Bottom line, educate yourself, and shop wisely for medical care, and this disease can be successfully managed.
I was recently diagnosed with lupus. I had read many books and research papers before getting to The Lupus Encyclopedia. It is my number one 'go-to' resource for my disease. Dr. Thomas has put together a clear, but not dumbed down, resource about lupus and what you need to do to manage it as well as communicate well with your health team. He is up to date with the most current information about treatments and recent new understandings about how the disease works. It's great having it all in one place. I would recommend this book to any one who has the disease or has a loved one with it. Lupus takes a lot of management and understanding the trade off of the decisions you have to make. This is the only book that has actually helped me become a better member of my health team.
AWESOME, AWESOME BOOK!!! My husband and I each have our own bookmarks init as he reads anything that I put in front of him that has to do with my illnesses, medicines and treatments...I am straddling @ 35 meds/day and 10 auto-immune disorders. I also just ordered this book today for my Parents. EVERYONE with Lupus or any of the other many associated auto immune diseases / disorders should have to read and use as a reference. I brought into my Rheumatologist's when I went in for my Rituxan treatment. They LOVED it and were going to order 1 or 2 to have onsite for patients to use / read while they where there getting any of their numerous treatments. Also, this book is VERY inexpensive for being a 900 page book...unbelievable! I pre-ordered mine in February 2014 and finally received in June 2014...WELL WORTH THE WAIT!!!!!
Having recently been diagnosed with Lupus I needed a resource to help me better understand my condition. This book is filled with information for anyone suffering with Lupus, Fibromyalgia, Hoshimoto's, and various other autoimmune disorders. I love how the author explained the medical side of an autoimmune disease for the lay person to understand. It is very well written and easy to understand. I love the different chapters on medications used to treat lupus, their side effects, as well as their benefits. This is a wonderful book.
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